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Confronting illness with a
poet's pen
Hard-fought struggles
witnessed firsthand inspire
books of verse
By TOM MAYO / The Dallas
Morning News
For more than a month,
many have watched – with
equal parts fascination and
horror – the psychodrama
that is the case of Terry
Schiavo. Ms. Schiavo lies in
a vegetative state in a
Pinellas County, Fla.,
nursing home while her
husband, her parents, her
newly appointed guardian,
the courts, the legislature
and the governor of Florida
fight over who should decide
whether she is kept alive or
allowed to die.
Ms. Schiavo's
brain-damaged condition is a
tragedy that has brought her
family together in a
vise-grip of distrust,
anger, rejection and denial.
In less dramatic fashion,
however, patients and their
families daily confront the
reality of end-of-life
decision-making. Not
surprisingly, some of them –
as well as their physicians
and nurses – have turned to
writing or reading poetry
for comfort, guidance or
perspective, or to share
their losses.
Early in Amy Gerstler's
Medicine
(Penguin USA, $15.95
paperback), there is a poem
("To a Young Woman in a
Coma") that speaks to the
grief of Terry Schiavo's
family:
You haven't gulped down
your allotted portion
of joy yet, so you must
wake up. Recover ...
Come up from the
basement. Climb those damp
plank stairs and reenter
the squinty glare
of consciousness. Grip
the rickety handrail.
If words could make the
wish come true, surely these
plaintive lines would cure:
. . . So wiggle your
toes. Groan.
Open those gunky eyes.
You need to grow older,
have those babies, try to
describe what
the other side was like,
go ice skating.
The one left mourns
Eventually, it seems, all
good poets pay a visit to
Shakespeare's "bare ruined
choirs." In recent years,
one thinks of Donald Hall's
lamentations upon the
illness and death of his
wife, Jane Kenyon, in
Without (Mariner
Books, $13 paperback) and in
last year's The
Painted Bed (Mariner
Books, $14 paperback). In
addition, there are 61
reasons to read Hayden
Carruth's fabulous
collection, Scrambled
Eggs & Whiskey
(Copper Canyon Press, $14
paperback), but his poems
about his daughter's
struggle against cancer are
(for me, at least) the most
arrestingly insistent.
For more concentrated
attention to the
institutionalized rituals of
illness and death, Abba
Kovner's
Sloan-Kettering (Schocken
Books, $17) provides the
poet's reflection on his own
impending death, drawing the
reader into a universe of
hospital sounds and smells,
as well as fear and fury,
forgiveness and faith.
And Alan Shapiro, one of
the best poets around today,
provides an emotionally rich
account of his
Broadway-actor brother's
losing battle with brain
cancer in Song and
Dance (Houghton
Mifflin, $22, forthcoming in
paperback from Mariner in
February 2004). Many of Mr.
Shapiro's best poems in this
collection are cast as
question-and-answer sessions
between the poet and an
unnamed interrogator. The
call-and-response structure
quickly draws us into a
story of brotherly love and
loss. The personality of the
brother shines through most
clearly in the closing essay
(or prose poem?), "Last
Impressions." One scene
brings us back, unwittingly
yet achingly, to the parents
of Terry Schiavo. Waiting
for the results of another
MRI, Mr. Shapiro's brother
paced in his small room
until
you had had enough and
opened the door
and stood there in the
doorway looking out at
the doctors,
nurses, patients bustling to
and fro,
you'd catch a nurse's eye
and suddenly Cagney, holding
on to
imaginary prison bars, would
ask,
"Any news from the
governor?"
Voices in chorus
There are also many good
poetry anthologies devoted
entirely to these themes.
One fine collection pulls
together 120 of the best of
10 years of weekly poems,
some by professional poets
and others by talented
amateurs, in the Journal
of the American Medical
Association. The result,
Uncharted Lines,
edited by JAMA's
poetry editor, Charlene
Breedlove (Boaz, $20),
traces an epiphanic line
that goes to the heart of
the daily practice (and
patients' experience) of
medicine. From another of
the healing professions,
Intensive Care ,
edited by Cortney Davis and
Judy Schaefer (University of
Iowa Press, $17.95
paperback) is a solid
collection of poems by
nurses writing from their
perspective as givers and
(in their occasional role of
patient) receivers of care.
Dr. Jon Mukand's skills
as anthologist par
excellence are in abundant
display in
Articulations: The Body and
Illness in Poetry
(University of Iowa Press,
$19.95 paperback). This is
the strongest collection
I've discovered, with poems
by some of the best poets of
the last half century,
organized under 10 topics,
including "The Body,"
"Patients' Views of
Illness," "Views of
Caregivers," "Family and
Friends," and "Social
Issues." Articulations
is an expanded and revised
version of Dr. Mukand's
earlier anthology,
Sutured Words, which,
unfortunately, is out of
print. Although most of the
poems from the first
collection have made it into
Articulations (plus
about 100 new poems), Dr.
Mukand's thoughtful
introductions to each
section have been dropped.
For their value as an
anthologist's guided tour of
his own collection, the
essays alone justify a trip
to the used-book sellers on
the Internet to find a copy
of Sutured Words.
Tom Mayo, an associate
professor of law at Southern
Methodist University,
teaches "Law, Literature &
Medicine." |