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PIN No. __________________________ LAW AND MEDICINE -- BIOETHICS Spring 2001
Instructions
* * * Part I You are counsel to a major, acute-care hospital. The director of nursing has presented you with the following question:
Answer the following ten (10) short-answer questions in the space provided. (Typists: Limit your answers to 100 words per question.) Each answer will be graded on a 14-point scale (14=A+; 13=A; 12=A-; etc.).
Note to WWW readers: Each question was allotted 20 double-spaced lines for answers.
Part II You are the legislative counsel for a state senator. The senator hands you the following newspaper article from the May 5 New York Times: Babies Born in Experiments Have Some babies born from a new method used to treat a rare form of infertility have genes from three different people in their cells, researchers are reporting. But the researchers emphasize that the added genes appear to be of no consequence. They are of a type that does not vary much from person to person and appear to have no effect on a child's characteristics, the researchers say. They say that their patients' babies who were born through use of the technique appear to be healthy. The treatment has been used solely for a rare form of infertility occurring in only a small percentage of patients at fertility clinics. Women with this condition have eggs that can be fertilized, but the resulting embryos simply fall apart, dying before they can implant in the uterus. Dr. Jacques Cohen, an infertility researcher at the Institute for Reproductive Medicine and Science at St. Barnabas Medical Center in Livingston, N.J., reasoned that the problem might be in the cytoplasm, the material that surrounds the nucleus of the egg and that directs its development after fertilization. So, in experiments that began a few years ago, Dr. Cohen and his colleagues began injecting cytoplasm from the eggs of fertile women into the eggs of these infertile women. The group has treated 30 women, Dr. Cohen said, and they have given birth to 15 babies. About 30 babies have been born worldwide as a result of this technique, he added. But the cytoplasm of an egg contains more than just proteins to help an embryo grow. It also contains mitochondria, which are self-contained tiny structures that use oxygen and nutrients to create energy for the cells. And mitochondria have their own genetic material. That gave rise to a question. If the investigators injected cytoplasm containing mitochondria into an infertile woman's egg and then fertilized the egg and created a successful pregnancy, would the baby have genes from three people: the infertile woman, the man whose sperm fertilized the egg, and the woman whose egg was the source of the additional cytoplasm? The answer, Dr. Cohen and his colleagues reported, was yes. In the March issue of a British journal, Human Reproduction, they described a genetic fingerprinting method they used to detect mitochondrial genes from the donor cytoplasm in blood cells of two 1-year-old babies born with this technique. They tracked the one region of the mitochondrial genetic material that normally varies from person to person, a region, Dr. Cohen said, in which genes are inactive. "There are differences, but they are not meaningful," he said. But in an editorial published in the journal Science on April 20, two ethicists, Erik Parens of the Hastings Center in Garrison, N.Y., and Eric Juengst of Case Western Reserve University in Cleveland, suggested that such treatments, because they result in permanent genetic alterations that in turn will be passed on to the babies' children, might not have been approved by a federal committee that oversees experiments that involve gene transfer. But, they explained, since the work was privately funded, the researchers had no obligation to ask the committee's permission to go ahead. The federal government does not pay for research related to human fertilization and early embryo development. Dr. Cohen said: "We didn't come to them because they didn't give us federal funds. I would be happy to talk to them if they gave us funds." Your senator wants to know: (A) whether the creation of babies with the DNA of three people has the potential for legal or ethical problems; (B) whether current legal rules deal with the problems sufficiently, or whether a statute might that might be needed to clarify the legal and ethical issues; and (C) whether this form of assisted reproduction should be prohibited or regulated by a new state law on the subject. Please write your answer in a blue book and label the parts of your answer A., B., and C.
Part III Circle the appropriate letter (T/F) preceding each of the following statements to indicate whether they are true or false. T F 1. Demetris Rogers was stabbed by Robert Courchesne when she was 8-1/2 months pregnant. Her child, Antonia, was delivered by emergency Caesarean section following which Demetris died. Antonia was placed on life support, and after six weeks, she died. In most states, Courchesne could not be charged with murder in the death of Antonia because she was not a “person” at the time she was injured. T F 2. On the same facts as Question 1, Antonia's estate would be able to maintain a tort action against Courchesne even if she had been stillborn. T F 3. In medical research involving human subjects, the requirement of “equipoise” applies only when the research subjects are minors, incompetent, or prisoners or are from some other vulnerable population. T F 4. Under the Common Rule, nonviable ex utero fetuses may be research subjects. T F 5. Anthony has primary liver cancer that has spread to other organs, his lymphatic system, and his spine. He is in enormous pain and his physician, Dr. Brown, believes Anthony has less than six months to live. Anthony has asked Dr. Brown to leave a lethal dose of morphine on the table next to his bed so that he “can end it all now” or, alternatively, to inject a lethal dose of morphine into Anthony's IV line. If Dr. Brown complies with either of Anthony's requests, he would be acting in accordance with the doctrine of double effect. T F 6. On the same facts as Question 5, if Dr. Brown complies with either of Anthony's requests, he would be acting lawfully in Oregon, alone among all U.S. jurisdictions. T F 7. With appropriate safeguards, human organs may be harvested from a non-heart-beating donor who does not satisfy the requirements for “brain death.” T F 8. In a majority of U.S. jurisdictions, an anencephalic newborn is born dead for purposes of the Uniform Anatomical Gift Act. T F 9. Under the Texas Advance Directives Act, artificial nutrition and hydration may be withheld or withdrawn from an incompetent patient with a terminal or irreversible condition, even if the patient has not executed any advance directive. T F 10. The principle of respect for autonomy is consistent with Kant's individualistic deontology but is not consistent with either act- or rule-utilitarianism.
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